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A History of Service

The Kentucky Hemophilia Foundation was founded in 1960 in Louisville, Kentucky, by parents of children with bleeding disorders to reach out to other parents dealing with the same challenges, to support each other, and to form a unified voice to advocate for improved health care for their children.

This grass roots effort sprang from a compelling need among families affected by hemophilia and similar bleeding disorders to fill a void for community support, public health education, professional raining, better treatment options, improved accessibility and timeliness of available treatment.

The concern and passion of these founders quickly turned an informal, community based support network into a statewide support organization that incorporated in 1960 and operated as the Kentuckiana Chapter of the National Hemophilia Foundation until 1997.

In 1997, this non-profit health agency obtained its own 501 (c) (3) tax exempt status as a charitable organization and subsequently changed its name to Kentucky Hemophilia Foundation, which more adequately reflects its jurisdiction and constituency.

The mission of the Kentucky Hemophilia Foundation has been from the beginning to assist individuals with hemophilia or similar bleeding disorders by providing education, advocacy, support services and promoting research toward a cure.

Second and third generation family members of the founding families continue to be involved with the organization to volunteer for fundraising and service activities.